Last month, Vision for Tomorrow Foundation Board Members virtually attended the Global Genes (GG) Patient Advocacy Summit as part of VFT’s new membership of the Global Genes RARE Foundation Alliance. The Alliance is a coalition of more than 750 rare disease organizations and members that believe in the power of collective impact and understand that together, we are more powerful. The Summit provided attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies. The VFT team spent time in sessions on the importance of mental health services for those with rare diseases and tips for finding those services. Another panel of speakers offered perspectives on being a parent with a rare disease. To learn more or view any of the sessions, check out the Global Genes website here: https://globalgenes.org/event/rare-patient-advocacy-summit/
